This is a personal page by parents of children with a rare degenerative disease. The page might be useful if you are studying the psychosocial effects of chronic illness, or self-help and support by families of those with chronic illness. The URL for the Bennett Boys'page is: http://www.caringbridge.org/ca/bennettboys/
Here is the introduction to the Bennett Boy's Page:
Ms. Bennett does not give her first name but she does give her last name in the page title and she does leave a "real life" address at the bottom of the page. Also clicking this link takes you to another page that gives both the Bennett parents' names as well as the assurance of the television station that this is a true story rather than a hoax. The Bennett Boys' Page is a personal site you could safely use in your research.
